Carers & Severe ME

Speaking up against the discrimination and prejudice that surrounds this illness. Vastly strengthening the Carer voice. Being heard....

NEWS

NB :

The NICE Draft Guidelines on ME .

For background information on ME :

Voices from the International ME Community

CarersTogether stakeholder response :

please let me have your comments as soon as possible. We can only post one response which needs to be subitted before Nov 24 2006 to NICE. Thanks.

We announce our brand new ME training

organisation:

Carer's News

NEW :   Our SONG !! - a little insight into life with ME - the sheer triumph of being able to get out and go for a coffee, even though we had to sit outside in the rain, because of noise-sensitivity and other issues. Just the ongoing fight to be "normal".....click here for the words and here to download the MP3     Jan 5 2006 - In just over 3 weeks we conducted an email survey of 64 severely affected sufferers and submitted the shocking results to the Gibson enquiry. Read it here, as well as a selection of other, superb material.   DOWNLOAD MARTIN WALKER'S FANTASTIC NEW BOOK : "ZERO RISK" FOR FREE.

simplyhealth caring awards launched New online BLUE Badge parking bay map launched DISABILITY NOW - special carers issue Plan to let carers qualify for full state pension New research reveals the major bottom line benefits for employers that support carers in the workplace, presenting for the first time a compelling business case. CARERS HUMAN RIGHTS ARE BEING BREACHED ! PLEASE READ. Consultation document on Government White Paper: Our health, our care, our say, A new direction for community services - the Princess Royal Trust Response TAKE PART IN A STUDY EXAMINING THE EFFECTS OF EXPRESSIVE WRITING ON HEALTH MP Barbara Keeley presented the Identification and Support of Carers (Primary Health Care) bill in the House of Commons on 27th March. Government is to provide emergency respite service for carers Attention all carers, you may well be eligible for a rebate from British Gas ! You've got until the end of January to apply. Carers save the state a staggering 57 billion pounds a year, yet we are often forced to live in poverty and subsist in retirement on means-tested benefits. Read more here. Carer's Emergency Schemes : a great idea and should be available everywhere. Invest in ME are running an excellent-sounding ME Conference on ME Awareness Day : Friday 12th May 2006 : Malcolm Hooper, Bruce Carruthers, Jane Cloby, Professor Basant Oure and Ian Gibson MP On-lin legal advice for disabled people : Our DISABLED CLIENT SERVICE, run in association with Disability Alliancegives full online access not only to solicitors specialising in various general areas of law but to benefits advisers from Disability Alliance. All advice is stored on the client's own secure legal advice file and remains available at all times. The Joseph Rowntree Foundation run an excellent site _ here's a list of their srticles concerning carers. How are you coping ? Stress is a real issue for carers. Very hard though to find anything on the specific issues of caring and ME. Anyway here's a general guide on coping as a carer from Channel 4. DLA ?? If it is that time again, you may find this superb guide from BHAS invaluable EMPLOYERS FOR CARERS - Very informative new site, backed by big business, for carers has been lauched. Well woth a look . FREE FLU JABS FOR CARERS-the department of health have announced that carers are now eligible for free immunisation. CARERS CLAIMING CARES ALLOWANCE NO LONGER NEED TO ATTEND FOR WORK FOCUSSED INTERVIEWS. NB. REPORT OF A PROJEST LOOKING AT THE LEARNING NEEDS OF THOSE WITH ME - I came acrss this just by chance and have only briefly looked at it - but well done The National Extension College - there's also free courses for carers. CARERS RIGHTS - here is an extremely useful Directgov resource,plus all the information on benefits etc you're likely to need. CARERS FORUM - if you haven't visited it before the forum run by Carers UK is well worth a look - if only to see how many carers are protesting about the insult that is Carers Allowance. CFS CAREGIVERS , for those caring for someone with ME/CFS- gosh what a wealth of material and information.